Le SIDA en Afrique subsaharienne (serveur d'exploration)

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How to Analyze Palliative Care Outcome Data for Patients in Sub-Saharan Africa: An International, Multicenter, Factor Analytic Examination of the APCA African POS

Identifieur interne : 003046 ( Main/Exploration ); précédent : 003045; suivant : 003047

How to Analyze Palliative Care Outcome Data for Patients in Sub-Saharan Africa: An International, Multicenter, Factor Analytic Examination of the APCA African POS

Auteurs : Richard Harding [Royaume-Uni] ; Lucy Selman [Royaume-Uni] ; Victoria M. Simms [Royaume-Uni] ; Suzanne Penfold [Royaume-Uni] ; Godfrey Agupio [Ouganda] ; Natalya Dinat [Afrique du Sud] ; Julia Downing [Royaume-Uni, Ouganda] ; Liz Gwyther [Afrique du Sud] ; Barbara Ikin [Afrique du Sud] ; Thandi Mashao [Afrique du Sud] ; Keletso Mmoledi [Afrique du Sud] ; Lydia Mpanga Sebuyira [Ouganda] ; Tony Moll [Afrique du Sud] ; Faith Mwangi-Powell [Ouganda] ; Eve Namisango [Ouganda] ; Richard A. Powell [Ouganda] ; Frank H. Walkey [Nouvelle-Zélande] ; Irene J. Higginson [Royaume-Uni] ; Richard J. Siegert [Royaume-Uni]

Source :

RBID : Pascal:13-0163072

Descripteurs français

English descriptors

Abstract

Context. The incidence of life-limiting progressive disease in sub-Saharan Africa presents a significant clinical and public health challenge. The ability to easily measure patient outcomes is essential to improving care. Objectives. The present study aims to determine the specific factors (if any) that underpin the African Palliative Care Association African Palliative Outcome Scale to assist the analysis of data in routine clinical care and audit. Methods. Using self-reported data collected from patients with HIV infection in eastern and southern Africa, an exploratory factor analysis was undertaken with 1337 patients; subsequently, a confirmatory analysis was done on two samples from separate data sets (n = 445). Results. Using exploratory factor analysis initially, both two- and three-factor solutions were examined and found to meet the criteria for simple structure and be readily interpretable. Then using confirmatory factor analysis on two separate samples, the three-factor solution demonstrated better fit, with Goodness-of-Fit Index values greater than 0.95 and Normative Fit Index values close to 0.90. The resulting three factors were 1) physical and psychological well-being, 2) interpersonal well-being, and 3) existential well-being. Conclusion. This analysis presents an important new opportunity in the analysis of outcome data for patients with progressive disease. It has advantages over both the total scoring of multidimensional scaling (which masks differences between domains) and of item scoring (which requires repeated analyses). The three factors map well onto the underlying concept and clinical goals of palliative care, and will enable audit of facility care.


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Le document en format XML

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<name sortKey="Mpanga Sebuyira, Lydia" sort="Mpanga Sebuyira, Lydia" uniqKey="Mpanga Sebuyira L" first="Lydia" last="Mpanga Sebuyira">Lydia Mpanga Sebuyira</name>
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</author>
<author>
<name sortKey="Downing, Julia" sort="Downing, Julia" uniqKey="Downing J" first="Julia" last="Downing">Julia Downing</name>
<affiliation wicri:level="3">
<inist:fA14 i1="01">
<s1>Department of Palliative Care, Policy, and Rehabilitation and The Cicely Saunders Institute of Palliative Care King's College London</s1>
<s2>London</s2>
<s3>GBR</s3>
<sZ>1 aut.</sZ>
<sZ>2 aut.</sZ>
<sZ>3 aut.</sZ>
<sZ>4 aut.</sZ>
<sZ>7 aut.</sZ>
<sZ>18 aut.</sZ>
<sZ>19 aut.</sZ>
</inist:fA14>
<country>Royaume-Uni</country>
<placeName>
<settlement type="city">Londres</settlement>
<region type="country">Angleterre</region>
<region type="région" nuts="1">Grand Londres</region>
</placeName>
</affiliation>
<affiliation wicri:level="1">
<inist:fA14 i1="03">
<s1>African Palliative Care Association, College of Health Sciences, Makerere University</s1>
<s2>Kampala</s2>
<s3>UGA</s3>
<sZ>7 aut.</sZ>
<sZ>14 aut.</sZ>
<sZ>15 aut.</sZ>
<sZ>16 aut.</sZ>
</inist:fA14>
<country>Ouganda</country>
<wicri:noRegion>Kampala</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Gwyther, Liz" sort="Gwyther, Liz" uniqKey="Gwyther L" first="Liz" last="Gwyther">Liz Gwyther</name>
<affiliation wicri:level="1">
<inist:fA14 i1="06">
<s1>Hospice Palliative Care Association of South Africa</s1>
<s3>ZAF</s3>
<sZ>8 aut.</sZ>
</inist:fA14>
<country>Afrique du Sud</country>
<wicri:noRegion>Hospice Palliative Care Association of South Africa</wicri:noRegion>
</affiliation>
<affiliation wicri:level="1">
<inist:fA14 i1="07">
<s1>Palliative Medicine Unit University of Cape Town</s1>
<s2>Cape Town</s2>
<s3>ZAF</s3>
<sZ>8 aut.</sZ>
<sZ>10 aut.</sZ>
</inist:fA14>
<country>Afrique du Sud</country>
<wicri:noRegion>Palliative Medicine Unit University of Cape Town</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Ikin, Barbara" sort="Ikin, Barbara" uniqKey="Ikin B" first="Barbara" last="Ikin">Barbara Ikin</name>
<affiliation wicri:level="1">
<inist:fA14 i1="08">
<s1>South Coast Hospice</s1>
<s3>ZAF</s3>
<sZ>9 aut.</sZ>
</inist:fA14>
<country>Afrique du Sud</country>
<wicri:noRegion>South Coast Hospice</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Mashao, Thandi" sort="Mashao, Thandi" uniqKey="Mashao T" first="Thandi" last="Mashao">Thandi Mashao</name>
<affiliation wicri:level="1">
<inist:fA14 i1="07">
<s1>Palliative Medicine Unit University of Cape Town</s1>
<s2>Cape Town</s2>
<s3>ZAF</s3>
<sZ>8 aut.</sZ>
<sZ>10 aut.</sZ>
</inist:fA14>
<country>Afrique du Sud</country>
<wicri:noRegion>Palliative Medicine Unit University of Cape Town</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Mmoledi, Keletso" sort="Mmoledi, Keletso" uniqKey="Mmoledi K" first="Keletso" last="Mmoledi">Keletso Mmoledi</name>
<affiliation wicri:level="4">
<inist:fA14 i1="05">
<s1>Division of Palliative Care Department of Internal Medicine, University of the Witwatersrand</s1>
<s2>Johannesburg</s2>
<s3>ZAF</s3>
<sZ>6 aut.</sZ>
<sZ>11 aut.</sZ>
</inist:fA14>
<country>Afrique du Sud</country>
<placeName>
<settlement type="city">Johannesbourg</settlement>
<region type="region" nuts="2">Gauteng</region>
</placeName>
<orgName type="university">Université du Witwatersrand</orgName>
</affiliation>
</author>
<author>
<name sortKey="Mpanga Sebuyira, Lydia" sort="Mpanga Sebuyira, Lydia" uniqKey="Mpanga Sebuyira L" first="Lydia" last="Mpanga Sebuyira">Lydia Mpanga Sebuyira</name>
<affiliation wicri:level="1">
<inist:fA14 i1="04">
<s1>Infectious Diseases Institute, College of Health Sciences, Makerere University</s1>
<s2>Kampala</s2>
<s3>UGA</s3>
<sZ>12 aut.</sZ>
</inist:fA14>
<country>Ouganda</country>
<wicri:noRegion>Kampala</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Moll, Tony" sort="Moll, Tony" uniqKey="Moll T" first="Tony" last="Moll">Tony Moll</name>
<affiliation wicri:level="1">
<inist:fA14 i1="09">
<s1>Philanjalo Hospice , KwaZulu Natal</s1>
<s3>ZAF</s3>
<sZ>13 aut.</sZ>
</inist:fA14>
<country>Afrique du Sud</country>
<wicri:noRegion>Philanjalo Hospice , KwaZulu Natal</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Mwangi Powell, Faith" sort="Mwangi Powell, Faith" uniqKey="Mwangi Powell F" first="Faith" last="Mwangi-Powell">Faith Mwangi-Powell</name>
<affiliation wicri:level="1">
<inist:fA14 i1="03">
<s1>African Palliative Care Association, College of Health Sciences, Makerere University</s1>
<s2>Kampala</s2>
<s3>UGA</s3>
<sZ>7 aut.</sZ>
<sZ>14 aut.</sZ>
<sZ>15 aut.</sZ>
<sZ>16 aut.</sZ>
</inist:fA14>
<country>Ouganda</country>
<wicri:noRegion>Kampala</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Namisango, Eve" sort="Namisango, Eve" uniqKey="Namisango E" first="Eve" last="Namisango">Eve Namisango</name>
<affiliation wicri:level="1">
<inist:fA14 i1="03">
<s1>African Palliative Care Association, College of Health Sciences, Makerere University</s1>
<s2>Kampala</s2>
<s3>UGA</s3>
<sZ>7 aut.</sZ>
<sZ>14 aut.</sZ>
<sZ>15 aut.</sZ>
<sZ>16 aut.</sZ>
</inist:fA14>
<country>Ouganda</country>
<wicri:noRegion>Kampala</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Powell, Richard A" sort="Powell, Richard A" uniqKey="Powell R" first="Richard A." last="Powell">Richard A. Powell</name>
<affiliation wicri:level="1">
<inist:fA14 i1="03">
<s1>African Palliative Care Association, College of Health Sciences, Makerere University</s1>
<s2>Kampala</s2>
<s3>UGA</s3>
<sZ>7 aut.</sZ>
<sZ>14 aut.</sZ>
<sZ>15 aut.</sZ>
<sZ>16 aut.</sZ>
</inist:fA14>
<country>Ouganda</country>
<wicri:noRegion>Kampala</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Walkey, Frank H" sort="Walkey, Frank H" uniqKey="Walkey F" first="Frank H." last="Walkey">Frank H. Walkey</name>
<affiliation wicri:level="1">
<inist:fA14 i1="10">
<s1>School of Psychology Victoria University of Wellington</s1>
<s2>Wellington</s2>
<s3>NZL</s3>
<sZ>17 aut.</sZ>
</inist:fA14>
<country>Nouvelle-Zélande</country>
<wicri:noRegion>School of Psychology Victoria University of Wellington</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Higginson, Irene J" sort="Higginson, Irene J" uniqKey="Higginson I" first="Irene J." last="Higginson">Irene J. Higginson</name>
<affiliation wicri:level="3">
<inist:fA14 i1="01">
<s1>Department of Palliative Care, Policy, and Rehabilitation and The Cicely Saunders Institute of Palliative Care King's College London</s1>
<s2>London</s2>
<s3>GBR</s3>
<sZ>1 aut.</sZ>
<sZ>2 aut.</sZ>
<sZ>3 aut.</sZ>
<sZ>4 aut.</sZ>
<sZ>7 aut.</sZ>
<sZ>18 aut.</sZ>
<sZ>19 aut.</sZ>
</inist:fA14>
<country>Royaume-Uni</country>
<placeName>
<settlement type="city">Londres</settlement>
<region type="country">Angleterre</region>
<region type="région" nuts="1">Grand Londres</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Siegert, Richard J" sort="Siegert, Richard J" uniqKey="Siegert R" first="Richard J." last="Siegert">Richard J. Siegert</name>
<affiliation wicri:level="3">
<inist:fA14 i1="01">
<s1>Department of Palliative Care, Policy, and Rehabilitation and The Cicely Saunders Institute of Palliative Care King's College London</s1>
<s2>London</s2>
<s3>GBR</s3>
<sZ>1 aut.</sZ>
<sZ>2 aut.</sZ>
<sZ>3 aut.</sZ>
<sZ>4 aut.</sZ>
<sZ>7 aut.</sZ>
<sZ>18 aut.</sZ>
<sZ>19 aut.</sZ>
</inist:fA14>
<country>Royaume-Uni</country>
<placeName>
<settlement type="city">Londres</settlement>
<region type="country">Angleterre</region>
<region type="région" nuts="1">Grand Londres</region>
</placeName>
</affiliation>
</author>
</analytic>
<series>
<title level="j" type="main">Journal of pain and symptom management</title>
<title level="j" type="abbreviated">J. pain symptom manage.</title>
<idno type="ISSN">0885-3924</idno>
<imprint>
<date when="2013">2013</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
<seriesStmt>
<title level="j" type="main">Journal of pain and symptom management</title>
<title level="j" type="abbreviated">J. pain symptom manage.</title>
<idno type="ISSN">0885-3924</idno>
</seriesStmt>
</fileDesc>
<profileDesc>
<textClass>
<keywords scheme="KwdEn" xml:lang="en">
<term>AIDS</term>
<term>African</term>
<term>Factor analysis</term>
<term>Human</term>
<term>Human immunodeficiency virus</term>
<term>International</term>
<term>Malignant tumor</term>
<term>Multicenter study</term>
<term>Palliative care</term>
<term>Prognosis</term>
<term>Sub-Saharan Africa</term>
</keywords>
<keywords scheme="Pascal" xml:lang="fr">
<term>Soins palliatifs</term>
<term>Pronostic</term>
<term>Homme</term>
<term>Afrique subsaharienne</term>
<term>International</term>
<term>Etude multicentrique</term>
<term>Africain</term>
<term>SIDA</term>
<term>Virus immunodéficience humaine</term>
<term>Tumeur maligne</term>
<term>Analyse factorielle</term>
<term>Accompagnement mourant</term>
</keywords>
<keywords scheme="Wicri" type="topic" xml:lang="fr">
<term>Soins palliatifs</term>
<term>Homme</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front>
<div type="abstract" xml:lang="en">Context. The incidence of life-limiting progressive disease in sub-Saharan Africa presents a significant clinical and public health challenge. The ability to easily measure patient outcomes is essential to improving care. Objectives. The present study aims to determine the specific factors (if any) that underpin the African Palliative Care Association African Palliative Outcome Scale to assist the analysis of data in routine clinical care and audit. Methods. Using self-reported data collected from patients with HIV infection in eastern and southern Africa, an exploratory factor analysis was undertaken with 1337 patients; subsequently, a confirmatory analysis was done on two samples from separate data sets (n = 445). Results. Using exploratory factor analysis initially, both two- and three-factor solutions were examined and found to meet the criteria for simple structure and be readily interpretable. Then using confirmatory factor analysis on two separate samples, the three-factor solution demonstrated better fit, with Goodness-of-Fit Index values greater than 0.95 and Normative Fit Index values close to 0.90. The resulting three factors were 1) physical and psychological well-being, 2) interpersonal well-being, and 3) existential well-being. Conclusion. This analysis presents an important new opportunity in the analysis of outcome data for patients with progressive disease. It has advantages over both the total scoring of multidimensional scaling (which masks differences between domains) and of item scoring (which requires repeated analyses). The three factors map well onto the underlying concept and clinical goals of palliative care, and will enable audit of facility care.</div>
</front>
</TEI>
<affiliations>
<list>
<country>
<li>Afrique du Sud</li>
<li>Nouvelle-Zélande</li>
<li>Ouganda</li>
<li>Royaume-Uni</li>
</country>
<region>
<li>Angleterre</li>
<li>Gauteng</li>
<li>Grand Londres</li>
</region>
<settlement>
<li>Johannesbourg</li>
<li>Londres</li>
</settlement>
<orgName>
<li>Université du Witwatersrand</li>
</orgName>
</list>
<tree>
<country name="Royaume-Uni">
<region name="Angleterre">
<name sortKey="Harding, Richard" sort="Harding, Richard" uniqKey="Harding R" first="Richard" last="Harding">Richard Harding</name>
</region>
<name sortKey="Downing, Julia" sort="Downing, Julia" uniqKey="Downing J" first="Julia" last="Downing">Julia Downing</name>
<name sortKey="Higginson, Irene J" sort="Higginson, Irene J" uniqKey="Higginson I" first="Irene J." last="Higginson">Irene J. Higginson</name>
<name sortKey="Penfold, Suzanne" sort="Penfold, Suzanne" uniqKey="Penfold S" first="Suzanne" last="Penfold">Suzanne Penfold</name>
<name sortKey="Selman, Lucy" sort="Selman, Lucy" uniqKey="Selman L" first="Lucy" last="Selman">Lucy Selman</name>
<name sortKey="Siegert, Richard J" sort="Siegert, Richard J" uniqKey="Siegert R" first="Richard J." last="Siegert">Richard J. Siegert</name>
<name sortKey="Simms, Victoria M" sort="Simms, Victoria M" uniqKey="Simms V" first="Victoria M." last="Simms">Victoria M. Simms</name>
</country>
<country name="Ouganda">
<noRegion>
<name sortKey="Agupio, Godfrey" sort="Agupio, Godfrey" uniqKey="Agupio G" first="Godfrey" last="Agupio">Godfrey Agupio</name>
</noRegion>
<name sortKey="Downing, Julia" sort="Downing, Julia" uniqKey="Downing J" first="Julia" last="Downing">Julia Downing</name>
<name sortKey="Mpanga Sebuyira, Lydia" sort="Mpanga Sebuyira, Lydia" uniqKey="Mpanga Sebuyira L" first="Lydia" last="Mpanga Sebuyira">Lydia Mpanga Sebuyira</name>
<name sortKey="Mwangi Powell, Faith" sort="Mwangi Powell, Faith" uniqKey="Mwangi Powell F" first="Faith" last="Mwangi-Powell">Faith Mwangi-Powell</name>
<name sortKey="Namisango, Eve" sort="Namisango, Eve" uniqKey="Namisango E" first="Eve" last="Namisango">Eve Namisango</name>
<name sortKey="Powell, Richard A" sort="Powell, Richard A" uniqKey="Powell R" first="Richard A." last="Powell">Richard A. Powell</name>
</country>
<country name="Afrique du Sud">
<region name="Gauteng">
<name sortKey="Dinat, Natalya" sort="Dinat, Natalya" uniqKey="Dinat N" first="Natalya" last="Dinat">Natalya Dinat</name>
</region>
<name sortKey="Gwyther, Liz" sort="Gwyther, Liz" uniqKey="Gwyther L" first="Liz" last="Gwyther">Liz Gwyther</name>
<name sortKey="Gwyther, Liz" sort="Gwyther, Liz" uniqKey="Gwyther L" first="Liz" last="Gwyther">Liz Gwyther</name>
<name sortKey="Ikin, Barbara" sort="Ikin, Barbara" uniqKey="Ikin B" first="Barbara" last="Ikin">Barbara Ikin</name>
<name sortKey="Mashao, Thandi" sort="Mashao, Thandi" uniqKey="Mashao T" first="Thandi" last="Mashao">Thandi Mashao</name>
<name sortKey="Mmoledi, Keletso" sort="Mmoledi, Keletso" uniqKey="Mmoledi K" first="Keletso" last="Mmoledi">Keletso Mmoledi</name>
<name sortKey="Moll, Tony" sort="Moll, Tony" uniqKey="Moll T" first="Tony" last="Moll">Tony Moll</name>
</country>
<country name="Nouvelle-Zélande">
<noRegion>
<name sortKey="Walkey, Frank H" sort="Walkey, Frank H" uniqKey="Walkey F" first="Frank H." last="Walkey">Frank H. Walkey</name>
</noRegion>
</country>
</tree>
</affiliations>
</record>

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